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Friday, 07 November 2008 10:18 |
 Brighton Pavilion MP, David Lepper is calling on the Primary Care Trusts of Sussex to provide funding to further develop NHS services for those suffering from the Chronic Fatigue Syndrome/Myalgic Encephalopathy in the county. The present service consisting of specialist doctors and therapists is based in Burgess Hill and holds clinics in Hove and Eastbourne but the team are struggling to cope with the number of referrals that they have received since becoming operational in 2005. Mr Lepper has written to the PCTs of East Sussex, Brighton & Hove and West Sussex asking what plans they have to improve and expand provision for the estimated 6,000 people affected by the illness across Sussex. David Lepper says: “Further development funding is needed to bring the service In line with the clear recommendations in Lord Darzi’s Next Stage Review of the NHS, which focuses on quality, as well as recommending that NICE guidelines should be fully implemented.” “ As Health Minister Ann Keen made clear in answering a Parliamentary Question put down by me It is the responsibility of local health bodies to commission services, funded from their general allocations, to meet the needs of those in their local population living with chronic fatigue syndrome/ME as detailed in the guidance produced by the National Institute for Health and Clinical Excellence.” Colin Barton, Chairman of the Sussex ME/CFS Society says: “The present service that we helped set up four years ago is doing an admirable job with the limited resources available but needs further support to cope with the demands of a waiting list of people requiring confirmation diagnosis and specialist management.”
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Monday, 29 September 2008 08:40 |
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 Nearly 250 people packed Hove Town Hall on September 26th to hear Prof Leslie Findley, Dr Keith Hine, Dr Kamal Patel, Dr Alan Stewart, Dr Mario Vegara-Williamson and Dr Mike Broughton along with George Armstrong from AfME give presentations and enter into discussions. Chairman of the Parliamentary group for ME, Des Turner MP was there as were representatives of the local NHS specialist CFS/ME teams and several GPs, nurses and social workers. Representatives of the local Primary Care Trusts and education authorities also attended and various organisations and practitioners had information stands on site. There was a wonderfully positive and friendly atmosphere at the venue and refreshments were served and music played.
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Tuesday, 23 September 2008 08:45 |
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Local doctors and patients along with social workers and MPs are attending a conference at Hove Town Hall on Friday September 26th to learn more about the Chronic Fatigue Syndrome – ME. Over 200 delegates are expected to hear specialists speak about diagnosing and managing the illness and alternative practitioners will have information stands at the venue. Colin Barton, Chairman of the Sussex & Kent ME/CFS Society says: “Most doctors these day recognise ME as a serious illness and do their best to treat and support patients and there are now specialist NHS services operational across the counties that have dealt with hundreds of referrals. More funding is needed however to further develop these essential services and we are calling on the local Primary Care Trusts (PCTs) to provide further support.”
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Tuesday, 09 September 2008 10:06 |
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The Autumn edition of the Sussex & Kent ME/CFS Society’s 20 page newsletter includes local and national ME/CFS related news and an article by the clinician at the Sussex NHS specialist CFS/ME Services along with pieces on the Association for Young people with ME (AYME), local Yoga classes and pregnancy with CFS/ME. Emotional Freedom Technique (EMT) and Kinesiology are also covered and there are a number of interesting articles written by members. To secure your copy see the Join Us page of this website.
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Friday, 29 August 2008 15:16 |
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No need to book - Graded gentle yoga postures - For all ages
A supportive atmosphere encouraging you to work at your own pace
Opportunity to relax and enjoy working with the breath and body in harmony leaving you feeling relaxed and energised
Amanda Zaninetti is a qualified Wheel of Yoga Teacher with over 20 years experience
Amanda has been running this class for over 10 years with proven results
Mondays at 2.30 (for 1 hour) - Cornerstone Community Centre, Church Road, Hove, BN3 2FL (corner First Ave/Church Road)
Cost: £5 – you only pay for sessions you attend
For more information tel: 07939830096
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Page 2 of 3 |
Well folks it's twenty years since our organisation was founded in 1987. 
Contact us to join our Society, receive newsletters, participate in our mailing list and our special interest groups. 
You can make a difference in lives of people affected by ME by purchasing Christmas Cards from us 
