Brighton Pavilion MP, David Lepper is calling on the Primary Care Trusts of Sussex to provide funding to further develop NHS services for those suffering from the Chronic Fatigue Syndrome/Myalgic Encephalopathy in the county. The present service consisting of specialist doctors and therapists is based in Burgess Hill and holds clinics in Hove and Eastbourne but the team are struggling to cope with the number of referrals that they have received since becoming operational in 2005. Mr Lepper has written to the PCTs of East Sussex, Brighton & Hove and West Sussex asking what plans they have to improve and expand provision for the estimated 6,000 people affected by the illness across Sussex. 

David Lepper says: “Further development funding is needed to bring the service In line with the clear recommendations in Lord Darzi’s Next Stage Review of the NHS, which focuses on quality, as well as recommending that NICE guidelines should be fully implemented.” “ As Health Minister Ann Keen made clear in answering a Parliamentary Question put down by me It is the responsibility of local health bodies to commission services, funded from their general allocations, to meet the needs of those in their local population living with chronic fatigue syndrome/ME as detailed in the guidance produced by the National Institute for Health and Clinical Excellence.”

Colin Barton, Chairman of the Sussex ME/CFS Society says: “The present service that we helped set up four years ago is doing an admirable job with the limited resources available but needs further support to cope with the demands of a waiting list of people requiring confirmation diagnosis and specialist management.”

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