Research

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Research

Kent Patients Survey 2005

Initial analysis
The research was conducted to gain data to aid our support and campaigning activities across the county of Kent. We distributed 304 questionnaires of which 186 were completed (61% response).

87% of respondents had a firm diagnosis of ME or CFS or PVFS from a GP or hospital doctor.

Most patients had been ill for over 10 years the average overall being 14.07yrs.

The Sussex ME/CFS Society (incorporating Kent ME Society) Survey 2003

EXECUTIVE SUMMARY
25% of members had joined the society having heard of it through a national ME organisation, whereas only 7% had joined through NHS healthcare recommendations.

89% of members had joined to find out more information about ME/CFS with 60% of those also wanting to get support, access services and help support the society.

Chronic Fatigue Syndrome/ME in Sussex 2002 Survey

EXECUTIVE SUMMARY ME is classified by the World Health Organisation as a disease of the nervous system (1). The recent Chief Medical Officers' Working Group Report (2002) recognises that CFS/ME "can cause profound and often prolonged illness and disability and can have a very substantial affect to the individual and family" (2).
Read more... [Chronic Fatigue Syndrome/ME in Sussex 2002 Survey]

Chronic Fatigue Syndrome/ME Sufferers in Sussex: Their Needs and Experiences of Local Healthcare Provision.

REPORT, FEBUARY 1999 - EXECUTIVE SUMMARY The research was conducted in response to the Chief Medical Officer recognising Chronic Fatigue Syndrome/ME (CFS/ME). CFS/ME is classified by the World Health Organisation (1992) as a disease of the nervous system, and the Department of Health recognises it as a 'debilitating and distressing condition' (DoH 1998).
Read more... [Chronic Fatigue Syndrome/ME Sufferers in Sussex: Their Needs and Experiences of Local Healthcare Provision.]