The Sussex & Kent ME/CFS Society is a constituted registered charity (1082681) that works with the national patient organisations Action for ME and Association for Young People with ME.
We receive regular support from the local authorities, businesses and trusts but mostly rely on our members annual subscriptions and donations.
The organisation is managed by a small team of volunteers that include the charity’s trustees. The work is shared by the committee and other volunteers including those that run special interest groups.
The charity is a member organisation of a number of local and national committees and working groups including the NHS Kent & Medway CFS/ME Service and the NHS Sussex-wide CFS/ME Service along with the British Association for CFS/ME (BACME) and the UK CFS/ME Research Collaborative.
The organisation has seven honorary patrons. These are Sir Andrew Bowden MBE, Prof Anthony J Pinching, Simon Kirby MP, Dr Keith Hine, Mr Russell Grant, Caroline Lucas MP and Miss Jenny Seagrove.
Group officers often work with AfME’s head office staff and the organisation’s Chairman Colin Barton was a member of the Government’s Chief Medical Officer’s ME/CFS Working Party.
Group officers have working relations and easy access to the Group’s advisors Dr Alan Stewart, Dr Esther Crawley, Dr Alastair Miller, Dr Gabrielle Murphy and Prof Leslie Findley.
The organisation has worked hard in keeping regular contact with members of the medical profession and support agencies in the region and has kept ME/CFS in high profile through the local media.
Sussex & Kent ME/CFS Society
PO Box 309
Phone: 01273 674828
Disclaimer: Treatments or practitioners mentioned at this website are for information only. We do not recommend specific treatments although we welcome contributions and opinions.
Our Chairman Colin Barton, representing the organisation to health authorities