The Sussex & Kent ME/CFS Society is a constituted registered charity (1082681) that was founded in 1987 working with hospital consultant Dr Keith Hine and Brighton MP Sir Andrew Bowden.
The organisation is managed by a small team of volunteers that include the charity’s trustees. The work is shared by the committee and other volunteers including those that run special interest groups.
The charity is a member organisation of a number of local and national committees and working groups including the NHS Kent & Medway CFS/ME Service and the NHS Sussex-wide CFS/ME Service along with the British Association for CFS/ME (BACME) and the UK CFS/ME Research Collaborative.
The organisation has seven honorary patrons. These are Sir Andrew Bowden MBE, Prof Anthony J Pinching, Simon Kirby MP, Dr Keith Hine, Mr Russell Grant, Caroline Lucas MP and Miss Jenny Seagrove.
Group officers have working relations and easy access to the charity’s advisors Dr Alan Stewart, Prof Esther Crawley, Dr Alastair Miller, Dr Gabrielle Murphy, Dr Neil Harrison and Prof Leslie Findley.
The organisation has worked hard in keeping regular contact with members of the medical profession and support agencies in the region and has kept ME/CFS in high profile through the local media.
Sussex & Kent ME/CFS Society
PO Box 309
Phone: 01273 674828
Disclaimer: Treatments or practitioners mentioned at this website are for information only. We do not recommend specific treatments although we welcome contributions and opinions.
Our Chairman Colin Barton, representing the organisation to health authorities