“I’m living with chronic fatigue but I’m coping” SOCIAL worker Catherine Bleach is living with an invisible condition that not many can recognise. The 53-year-old from Brighton was diagnosed four years ago with a life-changing condition, Myalgic Encephalomyelitis (ME), better known as Chronic Fatigue Syndrome. As this is ME Awareness Week, Catherine hopes to inspire other […]

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Many people with CFS/ME have been put off exercising and activity by previous ill-advised advice to go to the gym or similar, taking little account of their illness and current fitness levels. This may have been from someone with little knowledge of CFS/ME. Others have decided for themselves to resume exercise but have started at […]

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I have been in this field for over 20 years, seen its highs and lows, personally and universally, and stood both strong and battered with colleagues. However, I have never been in any doubt at all that the talent, dedication, and integrity resonating from the health professionals in this field is nothing short of inspiring, […]

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At a talk in Norway on Nov 21st, Dr. Mella revealed that the Rituximab trial that many laid their hopes on has failed. We don’t know and won’t know the details of the failure until the paper is published next year, and Drs. Fluge and Mella talk more about the study. Dr. Mella said they […]

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The Sussex & Kent ME/CFS Society’s main aim is to see those affected by ME/CFS lead the best lives possible. We aim to share reliable information to enable people to make decisions about how best their health and lives could be improved whether through the NHS or alternative therapies helped by complimentary approaches etc. We […]

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The first trial to investigate The Lightning Process® (LP) is published today [21/9] in the Archives of Disease in Childhood. In this trial, the effectiveness of LP in addition to specialist medical care was compared to specialist medical care alone in children with mild or moderate chronic fatigue syndrome/ME. The study’s findings indicate that LP […]

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The National Institute for Health and Care Excellence (NICE) has decided to review its clinical guideline on chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) following consultation with ME charities and other stakeholders including BACME. In a statement NICE said: “After considering all the evidence and views of topic experts, we decided that a full update with […]

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Our medical advisor Dr Neil Harrison attended the recent UK CFS/ME Research Collaborative conference in Bristol where he delivered a most interesting and encouraging presentation about the two research studies being carried out in Sussex that our charity and members are assisting with. The UK CFS/ME Research Collaborative (CMRC) aims to promote the highest quality […]

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The Autumn edition of our quarterly newsletter is now in circulation amongst members of the charity. We continue to publish four editions a year instead of reducing to three as some other organisations have done. The latest edition includes: News on the Dr Paul private doctor service, research update, the latest on Vitamin D by […]

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We are always aware there are a significant number of people severely affected by ME or Chronic fatigue syndrome and housebound with a few being virtually bed-bound and in need of care. Sadly it is often the most in need that are the most neglected. We would like to hear more from those in this […]

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