An evaluation (White et al, 2012, Journal of the Royal Society of Medicine short reports) of referrals made by GPs to the specialist clinic at Bart’s Hospital found that 49% did not have a diagnosis of ME/CFS. A study (Newton et al, 2010, Journal of the Royal College of Physicians of Edinburgh) of patients referred […]

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We are concerned for some people with Myalgic encephalopathy (ME) or Chronic fatigue syndrome (CFS) and other seriously debilitating conditions that are being put through assessments by a Government contracted company with a view to cutting down the national welfare bill. These harsh assessments for Personal Independent Payment (PIP) applicants are often being carried out […]

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Sussex Argus – May 27th: A specialist service for people with ME has marked its 10th anniversary. The Haywards Heath baced facility is the busiest of its kind in the UK and continues to receive 40 referrals a month. The Sussex & Kent ME Society is a supporter of the NHS-run service, which provides assessments […]

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The Sussex & Kent ME/CFS Society is holding a special medical and research meeting at the Brighthelm Centre in Brighton on Thursday 6th October. The speakers will be Prof Leslie Findley, Dr Alan Stewart, Dr Neil Harrison along with staff members of the NHS Sussex CFS/ME Service. This should be a very interesting meeting centring […]

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During ME Awareness week (May 9-15th) the Sussex & Kent ME Society is highlighting a recently published study that compared the brain activity of ME or Chronic fatigue syndrome patients with that of healthy controls. The results showed a clear difference both in the strength of brain activity and in the position of the activity […]

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ME website is revamped A charity which supports people with the debilitating condition ME has redesigned its website. The Sussex ME Society will use the site to cover the latest local and national news and developments relating to the condition in an easily understood format. The organisation is supported by some of the leading medical […]

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A new study into young people with chronic fatigue syndrome highlights the need for more specialised services, the Sussex ME Society claims. One in fifty 16-year-olds are affected by chronic fatigue syndrome (CFS), also known as myalgic encephalopathy (ME), according to the study released at the beginning of the week by researchers from the University […]

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ME group highlights difficulties faced by sufferers. A charity has been highlighting the memory and concentration problems faced by people with the debilitating condition. The Sussex ME Society cares for thousands of people affected by the condition across the county. Experts have said cognitive deficits are often the main disabling feature of ME or chronic […]

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The Sussex & Kent ME/CFS Society has recently raised funds at the Hove branch of Waitrose and ASDA at Brighton Marina. The society wishes to thank the staff and customers of these stores who helped raise nearly £450 that goes towards supporting those affected by the debilitating illness that can sometimes follow a viral infection […]

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A man who battled the debilitating condition ME for more than 20 years has spoken of his long fight back to health. Jonathan Burrell hopes his story may help inspire others struggling with the illness. The 52 year old had been forced to give up playing sports and could not hold down a job during […]

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