The Sussex & Kent ME/CFS Society has formally become an Associate Member of the recently formed UK CFS/ME Research Collaborative that was launched at the Welcome Collection in London earlier this year. The Collaborative aims to promote the highest quality of basic and applied evidenced based and peer reviewed research into CFS/ME. The organisation is […]

Read More

The Sussex ME Society that cares for many of the 6,000 people across the county affected by Myalgic Encephalopathy(ME) or Chronic Fatigue Syndrome (CFS) are running yoga classes in Hove specifically designed to suit those with the illness and similar conditions. The Wheel of Yoga qualified teacher has been working with people with ME for […]

Read More

The Sussex & Kent ME/CFS Society has come out tops recently at two supermarkets that operate charity green disc schemes. Three nominated charities per month are awarded discs collected from the checkouts that are placed in containers by the customers as they leave. This scheme reflects the customers preferred charity deserving of a supermarket cheque […]

Read More

Caroline Lucas MP and Mike Weatherley MP who are Patrons of the Sussex & Kent ME/CFS Society, have backed an Early Day Motion (EDM) that promotes the need for world-class research into ME/CFS. EDM 212 (UK Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Research Collaborative) highlights some of the limitations with past research on ME/CFS and calls for […]

Read More

Research just published has shown that people affected by ME experience visual processing problems and these findings could help with diagnosing the syndrome. Scientists at the University of Leicester assessed visual attention difficulties commonly reported by those with Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome (CFS) and have provided experimental evidence for ME/CFS-related difficulties in […]

Read More

During ME Awareness time the Sussex & Kent ME/CFS Society has come out tops at the Brighton Marina ASDA, where customers voted with discs for their favourite local charity most deserving of a cheque for £200.00 towards its’ work.

Read More

Findings mark lauch of UK research consortium to advance studies into ME and CFS The UK CFS/ME Research Collaborative (UK CMRC) is a new initiative led by the country’s leading experts in the field to expand medical studies into this complex set of disorders by facilitating greater expertise and improved co-ordination of wide-ranging research activities. […]

Read More

Things have come some way since the days when Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome (CFS) was considered a mystery. The debilitating and complex illness is now classified as a neurological disorder and there is a specialist NHS service in Sussex that has dealt with over 3,000 referrals since its inception in 2005. Colin […]

Read More

Stress-response systems in people with chronic fatigue syndrome are signalling to the body that it is not safe to relax, creating a state of high alert that can be likened to post-traumatic stress disorder, new research suggests. Researchers from UNSW have discovered for the first time that reduced heart rate variability – or changes in […]

Read More