The research was conducted to gain data to aid our support and campaigning activities across the county of Kent. We distributed 304 questionnaires of which 186 were completed (61% response).
87% of respondents had a firm diagnosis of ME or CFS or PVFS from a GP or hospital doctor.
Most patients had been ill for over 10 years the average overall being 14.07yrs.
The majority were female – 77%.
2% were under 20 years of age, 30% between 21 and 40, 54% between 41 and 60 and 15% were over 60 years old.
13% described their present state of health as mild (able to do some work), 63% moderate (unable to work but able to get around most of the time), 22% severe (virtually housebound) and 2% were very severe (virtually bedbound).
79% described their GP as being reasonably helpful.
69% of respondents had seen a hospital doctor 51% of which were described as reasonably helpful.
76% of patients said they had adequate general information about the illness and how to manage it.
60% did not consider they received adequate general support from professionals.
68% had not experienced serious difficulty gaining their benefit entitlements.