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What is ME/CFS?

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30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

Sussex researchers are looking for people aged 18 to 65 who have a firm diagnosis of Chronic Fatigue Syndrome/ME or Fibromyalgia to take part in research which seeks to understand the biological and physical mechanisms of chronic pain and fatigue. This will involve routine medical procedures, including brain scans, heart rate and blood pressure measurement, […]

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A yoga class for ME/CFS sufferers has been running in Hove since 1995. We meet once a week from 2.00 – 3.00 on a Monday afternoon. The class that follows, Yoga for Health, taught by the same teacher, Amanda Zaninetti, runs from 3.15 to 4.15, and would also be suitable if the earlier time isn’t […]

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Helping people who are ‘trapped in the vice-like jaws of ME’ with yoga group. Thousands of people in Sussex suffering from the chronic long-term illness ME receive vital support from a Brighton-based group – and its yoga classes have proved a huge success. Read more at: https://www.brightonandhoveindependent.co.uk/news/health

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Neil Harrison has recently been promoted to a Professor at Brighton and Sussex Medical School. This promotion was in recognition of his many research achievements and in particular his seminal work clarifying how immune activation acts on the brain to alter mood, motivation and cognition.

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In a letter to the Sussex & Kent ME/CFS Society the Archbishop of Canterbury, Justin Welby, whose daughter Katharine is affected by ME, writes: “Thank you for all you do with those affected by ME or CFS and for the work you are undertaking in continuing to enable Sussex and Kent health authorities to set […]

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Medical Research Council Training Fellow Dr Jessica Eccles of Brighton and Sussex University Hospital NHS Trust has joined the Medical advisory team of the Sussex & Kent ME/CFS Society. Dr Eccles is currently leading a research study at Sussex University seeking to understand brain-body interactions particularly concerning fatigue and pain in subjects diagnosed with ME/CFS […]

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Brighton Kemptown MP, Lloyd Russell-Moyle and Brighton Pavilion MP, Caroline Lucas, who is a Patron to the Sussex & Kent ME/CFS Society have both written to Department of Health ministers pressing for further funding to be made available for services and research into ME or Chronic fatigue syndrome. Following a recent Parliamentary debate on the […]

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During ME Awareness week there has been coverage in the Sussex Argus and members have taken part in a MissingMillions activity in Lewes. There was also a screening of the UNREST film shown in Brighton.

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Further to the item (11/5) on ME or Chronic fatigue syndrome that affects nearly 10,000 adults and children across Sussex and Kent. People with ME would be encouraged to know that members of the ME Society are presently taking part in two important research projects being carried out by the Brighton and Sussex Medical School […]

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“I’m living with chronic fatigue but I’m coping” SOCIAL worker Catherine Bleach is living with an invisible condition that not many can recognise. The 53-year-old from Brighton was diagnosed four years ago with a life-changing condition, Myalgic Encephalomyelitis (ME), better known as Chronic Fatigue Syndrome. As this is ME Awareness Week, Catherine hopes to inspire other […]

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