What is ME/CFS?Join Us30 Years of Caring

What is ME/CFS?

Find out about the symptoms, causes and treatments available

Join Us

For the latest information and services we provide

30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

The Sussex & Kent ME/CFS Society’s main aim is to see those affected by ME/CFS lead the best lives possible. We aim to share reliable information to enable people to make decisions about how best their health and lives could be improved whether through the NHS or alternative therapies helped by complimentary approaches etc. We […]

Read More

The first trial to investigate The Lightning Process® (LP) is published today [21/9] in the Archives of Disease in Childhood. In this trial, the effectiveness of LP in addition to specialist medical care was compared to specialist medical care alone in children with mild or moderate chronic fatigue syndrome/ME. The study’s findings indicate that LP […]

Read More

The National Institute for Health and Care Excellence (NICE) has decided to review its clinical guideline on chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) following consultation with ME charities and other stakeholders including BACME. In a statement NICE said: “After considering all the evidence and views of topic experts, we decided that a full update with […]

Read More

Our medical advisor Dr Neil Harrison attended the recent UK CFS/ME Research Collaborative conference in Bristol where he delivered a most interesting and encouraging presentation about the two research studies being carried out in Sussex that our charity and members are assisting with. The UK CFS/ME Research Collaborative (CMRC) aims to promote the highest quality […]

Read More

The Autumn edition of our quarterly newsletter is now in circulation amongst members of the charity. We continue to publish four editions a year instead of reducing to three as some other organisations have done. The latest edition includes: News on the Dr Paul private doctor service, research update, the latest on Vitamin D by […]

Read More

We are always aware there are a significant number of people severely affected by ME or Chronic fatigue syndrome and housebound with a few being virtually bed-bound and in need of care. Sadly it is often the most in need that are the most neglected. We would like to hear more from those in this […]

Read More

Sussex researchers are looking for people aged 18 to 65 who have a firm diagnosis of Chronic Fatigue Syndrome/ME or Fibromyalgia to take part in research which seeks to understand the biological and physical mechanisms of chronic pain and fatigue. This will involve routine medical procedures, including brain scans, heart rate and blood pressure measurement, […]

Read More

Colin Barton was interviewed at the BBC Studio in Brighton live on the Danny Pike mid morning show on August 21st. An interview with Martine McCutcheon was included followed by Colin describing ME/CFS and what it can be like to live with along with the work of our charity. There were also a few phone […]

Read More

Researchers at the Stanford University School of Medicine (USA) have linked CFS to variations in 17 immune-system signalling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity. The findings provide evidence that inflammation is a powerful driver of the condition(s). See: http://med.stanford.edu/news/all-news/2017/07/researchers-id-biomarkers-associated-with-chronic-fatigue-syndrome.html

Read More

The National Institute for Health and Care Excellence (NICE) are considering a review of the CFS/ME guidelines that were produced in 2007. Although the guidelines have been useful to professionals and helped mainstream the illness there is certainly a need for a review now. The British Association for CFS/ME (BACME) have made a detailed submission […]

Read More