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What is ME/CFS?

Find out about the symptoms, causes and treatments available

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30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

Further to the item (11/5) on ME or Chronic fatigue syndrome that affects nearly 10,000 adults and children across Sussex and Kent. People with ME would be encouraged to know that members of the ME Society are presently taking part in two important research projects being carried out by the Brighton and Sussex Medical School […]

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“I’m living with chronic fatigue but I’m coping” SOCIAL worker Catherine Bleach is living with an invisible condition that not many can recognise. The 53-year-old from Brighton was diagnosed four years ago with a life-changing condition, Myalgic Encephalomyelitis (ME), better known as Chronic Fatigue Syndrome. As this is ME Awareness Week, Catherine hopes to inspire other […]

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Many people with CFS/ME have been put off exercising and activity by previous ill-advised advice to go to the gym or similar, taking little account of their illness and current fitness levels. This may have been from someone with little knowledge of CFS/ME. Others have decided for themselves to resume exercise but have started at […]

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We hold weekly Yoga for ME classes in Hove for all ages and abilities in a warm and supportive atmosphere. This is an opportunity to truly relax and enjoy gently moving with the breath, which creates calm in the mind. With expert guidance each session aims to leaves people feeling relaxed and energized. Call 01273 […]

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I have been in this field for over 20 years, seen its highs and lows, personally and universally, and stood both strong and battered with colleagues. However, I have never been in any doubt at all that the talent, dedication, and integrity resonating from the health professionals in this field is nothing short of inspiring, […]

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At a talk in Norway on Nov 21st, Dr. Mella revealed that the Rituximab trial that many laid their hopes on has failed. We don’t know and won’t know the details of the failure until the paper is published next year, and Drs. Fluge and Mella talk more about the study. Dr. Mella said they […]

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The Sussex & Kent ME/CFS Society’s main aim is to see those affected by ME/CFS lead the best lives possible. We aim to share reliable information to enable people to make decisions about how best their health and lives could be improved whether through the NHS or alternative therapies helped by complimentary approaches etc. We […]

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The first trial to investigate The Lightning Process® (LP) is published today [21/9] in the Archives of Disease in Childhood. In this trial, the effectiveness of LP in addition to specialist medical care was compared to specialist medical care alone in children with mild or moderate chronic fatigue syndrome/ME. The study’s findings indicate that LP […]

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The National Institute for Health and Care Excellence (NICE) has decided to review its clinical guideline on chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) following consultation with ME charities and other stakeholders including BACME. In a statement NICE said: “After considering all the evidence and views of topic experts, we decided that a full update with […]

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Our medical advisor Dr Neil Harrison attended the recent UK CFS/ME Research Collaborative conference in Bristol where he delivered a most interesting and encouraging presentation about the two research studies being carried out in Sussex that our charity and members are assisting with. The UK CFS/ME Research Collaborative (CMRC) aims to promote the highest quality […]

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