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What is ME/CFS?

Find out about the symptoms, causes and treatments available

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30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

Researchers at the Stanford University School of Medicine (USA) have linked CFS to variations in 17 immune-system signalling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity. The findings provide evidence that inflammation is a powerful driver of the condition(s). See: http://med.stanford.edu/news/all-news/2017/07/researchers-id-biomarkers-associated-with-chronic-fatigue-syndrome.html

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The National Institute for Health and Care Excellence (NICE) are considering a review of the CFS/ME guidelines that were produced in 2007. Although the guidelines have been useful to professionals and helped mainstream the illness there is certainly a need for a review now. The British Association for CFS/ME (BACME) have made a detailed submission […]

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The Sussex & Kent ME/CFS Society has welcomed research just published that shows up to one third of adults affected by the illness who attend specialist NHS services report substantial improvement in their health. There are around 50 NHS specialist chronic fatigue syndrome (ME/CFS) services in England, including the Haywards Heath and Maidstone Centres, that […]

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It’s good to see that more people in our region with ME/CFS these days are falling into the mild to moderate category and often improving with the help of various approaches more quickly than previously. As more professionals are recognising the illness sooner and administering symptom control along with giving sensible management advice people seem […]

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Conclusions – The experiences of CFS/ME patients in our study showed that NHS specialist CFS/ME services played a vital role in patients’ journeys towards an improved quality of life. This improvement came about through a process which included validation of patients’ experiences, acceptance of change, practical advice and support, and therapeutic outcomes. https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-017-2337-6

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During ME Awareness week (May 8 to 14) the Sussex & Kent ME Society that works for those affected by ME or Chronic fatigue syndrome is taking an important role in pressing for existing guidelines for the treatment of the illness to be expanded. The Sussex & Kent ME Society working with the former Brighton […]

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Sussex Argus 22/4 – A support group is backing calls for investment in specialist services for people affected by ME. Brighton Pavilion MP Caroline Lucas has written to department of Health ministers and the national Institute for Health and clinical Excellence (NICE) pressing for more support for patients. Ms Lucas is patron of the Sussex […]

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We are concerned for some people affected by ME, or Chronic fatigue syndrome, and other seriously debilitating conditions that are being put through assessments by a government contracted company with a view to cutting down the national welfare bill. These harsh assessments for Personal Independent Payment (PIP) applicants are often being carried out by employees […]

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Journal of Health Psychology 10/4/17 – The continued critiques of the PACE trial highlight how differing beliefs about the causes of chronic fatigue syndrome still influence how scientific studies in this area are accepted and evaluated. Causal beliefs about chronic fatigue syndrome and a modern version of Cartesian dualism are important in understanding the reaction […]

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