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What is ME/CFS?

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30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

During ME Awareness week in May (11-17) the Sussex ME Society is marking the 10th anniversary of the establishment of a specialist NHS service in the county that has dealt with more referrals than any other local ME service in the UK. The Sussex ME Society enjoys a good working relationship with the NHS Sussex […]

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A new scientific paper from the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health has revealed “distinct plasma immune signatures” in the early stages of ME/CFS. The report – which appears in the AAAS journal, Science Advances – describes the measurement of 51 immune biomarkers in blood plasma samples collected […]

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A charity which supports people with the debilitating condition ME has welcomed new research into the sleep element of the illness. Zoe Gotts has shown that napping, particularly in the afternoon, is associated with poorer cognitive functioning and more daytime sleepiness in people with the condition. She recently spoke at a conference organised by the […]

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As patron to the Sussex & Kent ME Society, Simon Kirby MP has asked the Department of Health why there is no information in the NICE guidelines for Chronic Fatigue Syndrome/Myalgic Encephalopathy on specific medications that are useful in controlling some of the symptoms of the illness. Many doctors are keen to help CFS/ME patients […]

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Colin Barton, Chairman of the Sussex & Kent ME/CFS Society I have been involved in the medical field of Myalgic encephalopathy (ME) or Chronic fatigue syndrome (CFS) for more than 28 years and have seen many positive changes in the recognition and treatment of the illness(s). Amazingly though we still hear of a few professionals […]

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A study by scientists at Stanford University School of Medicine has discovered differences in the brains of healthy people and people with ME. Dr Michael Zeineh and Dr José Montoya compared brain images of 15 ME patients and 14 healthy volunteers. “Using a trio of sophisticated imaging methodologies, we found that ME patients’ brains differ […]

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Caroline Lucas, MP for Brighton Pavilion, will be joining specialist ME doctors at Hove Town Hall on 7th October 2014. Doctors from London and Northumbria will come together with local and national charity officers to discuss the diagnosis and treatment of the illness as well as the latest research. Those talking at the meeting are […]

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