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What is ME/CFS?

Find out about the symptoms, causes and treatments available

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30 Years of Caring

It's been 30 years since our organisation was founded in 1987.

Caroline Lucas MP and Mike Weatherley MP who are Patrons of the Sussex & Kent ME/CFS Society, have backed an Early Day Motion (EDM) that promotes the need for world-class research into ME/CFS. EDM 212 (UK Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Research Collaborative) highlights some of the limitations with past research on ME/CFS and calls for […]

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Research just published has shown that people affected by ME experience visual processing problems and these findings could help with diagnosing the syndrome. Scientists at the University of Leicester assessed visual attention difficulties commonly reported by those with Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome (CFS) and have provided experimental evidence for ME/CFS-related difficulties in […]

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During ME Awareness time the Sussex & Kent ME/CFS Society has come out tops at the Brighton Marina ASDA, where customers voted with discs for their favourite local charity most deserving of a cheque for £200.00 towards its’ work.

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Findings mark lauch of UK research consortium to advance studies into ME and CFS The UK CFS/ME Research Collaborative (UK CMRC) is a new initiative led by the country’s leading experts in the field to expand medical studies into this complex set of disorders by facilitating greater expertise and improved co-ordination of wide-ranging research activities. […]

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Things have come some way since the days when Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome (CFS) was considered a mystery. The debilitating and complex illness is now classified as a neurological disorder and there is a specialist NHS service in Sussex that has dealt with over 3,000 referrals since its inception in 2005. Colin […]

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Stress-response systems in people with chronic fatigue syndrome are signalling to the body that it is not safe to relax, creating a state of high alert that can be likened to post-traumatic stress disorder, new research suggests. Researchers from UNSW have discovered for the first time that reduced heart rate variability – or changes in […]

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Working with the Brighton & Sussex Medical School the Sussex & Kent ME/CFS Society recently ran a survey about the experiences over two years of those affected by the Chronic Fatigue Syndrome – ME across their region. This is the first professionally run comprehensive study of its type and the findings are being seriously viewed […]

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INITIAL ANALYSIS The research was conducted to gain data to aid our support and campaigning activities across the county of Kent. We distributed 304 questionnaires of which 186 were completed (61% response). 87% of respondents had a firm diagnosis of ME or CFS or PVFS from a GP or hospital doctor. Most patients had been […]

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EXECUTIVE SUMMARY 25% of members had joined the society having heard of it through a national ME organisation, whereas only 7% had joined through NHS healthcare recommendations. 89% of members had joined to find out more information about ME/CFS with 60% of those also wanting to get support, access services and help support the society. […]

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EXECUTIVE SUMMARY ME is classified by the World Health Organisation as a disease of the nervous system (1). The recent Chief Medical Officers’ Working Group Report (2002) recognises that CFS/ME “can cause profound and often prolonged illness and disability and can have a very substantial affect to the individual and family” (2). Previous research conducted […]

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