Severely affected guidelines – February

Sussex Argus (21/2). A charity which supports people with ME has welcomed new guidelines aimed at improving care for those most severely affected by the condition.

The Sussex ME Society says the document, drawn up by the British Association for Chronic Fatigue Syndrome/ME (BACME), is designed to help professionals dealing with those who are house or bedbound feel better able to understand ME. It also helps them find ways to manage the complex illness to improve the patient’s quality of life.

ME is characterised by disabling persistent physical and mental fatigue, pain, cognitive dysfunction and other symptoms. At its most severe it can lead to individuals becoming housebound, bedbound or in a wheelchair. This leaves them dependent on family and carers for many or all basic activities of daily living for many years. However others have been known to return to health within a much shorter time.

Colin Barton from the Sussex ME Society said: “Sometimes those most in need are the most neglected and we hope that these guidelines will go some way to resolving that very unfair situation.”

The guidelines are available from Sussex & Kent ME/CFS Society.