Inevitable, anything that one writes about COVID 19 will be out of date before it is even on the website, but I shall try to cover a few interesting points Nomenclature Even the name has been changing, but we seem to have settled on the virus being called 2019 novel coronavirus (2019 nCoV) and the […]
We have had some enquiries about having a Pneumonia jab to tackle coronavirus. Dr Gabrielle Murphy of the Royal Free Hospital says: “No evidence.. And like all jabs might make you unwell for a while putting you more at risk” We are also being asked about the Malaria drug hydroxychloroquine’s usefulness against coronavirus. Dr Murphy […]
COVID-19, the formal name for the corona virus, is understandably causing a lot of concern for those with on-going or chronic illness. Currently there is no evidence to say if people with ME/CFS or other fatigue syndromes are at higher risk of catching the virus or from developing severe complications from the illness. What constitutes […]
The Yoga teachers have agreed that it would not be sensible to continue with the Yoga for ME class until the Coronavirus pandemic has run its course. Everyone who attends the classes has underlying health problems or is over 60, so we are taking the advice about social distancing to its logical conclusion.
Lead researcher Dr Jessica Eccles of the Brighton and Sussex Medical School presented a summary of provisional findings and ongoing work from the studies involving members of the Sussex & Kent ME/CFS Society. The research team Is using high quality HCP (Human Connectome Project) MRI to investigate effects of mild inflammation on brain function in […]
Included in this edition is a very concise and current article written by the highly qualified Dr Alastair Miller on the Coronavirus and Dr Alan Stewart who is one of the most experienced CFS/ME clinicians in the UK has done a piece on Obstructive Sleep Apnoea. Also included is the latest on the NICE Guidelines […]
“It is still too early to say how this epidemic will develop. The Chinese have taken very radical containment measures and it seems as though spread is slowing. Other nations have also adopted a preventative approach and there has so far been little evidence of person to person transmission out of China (with the exception […]
We are always aware there are a significant number of people severely affected by ME or Chronic fatigue syndrome and housebound with a few being virtually bed-bound and in need of care. Sadly it is often the most in need that are the most overlooked. We would like to hear more from people in this […]
The popular Yoga for ME classes have had a change of timing and now meet once a week from 2.30 – 3.30 on most Monday afternoons at Cornerstone Community Centre Hove. It is a drop-in and costs £5.00 per session. Call Cathy on 01273 553139 for more information.
Fortunately, The Sussex & Kent ME/CFS Society has seen a large number of its members obtaining a timely definitive diagnosis and receiving the best attention available. This has led to people making significant improvements with some able to move on to lead active lives. Regrettably, we are also aware of many that have been less fortunate and […]