The Sussex & Kent ME/CFS Society has welcomed new management guidelines for health professionals caring for patients affected by Myalgic encephalopathy (ME) or Chronic fatigue syndrome(CFS) launched by the British Association for CFS/ME (BACME). The Sussex & Kent ME Society that was founded 28 years ago is a member organisation of BACME as is the […]
An art exhibition of beautiful work by people with ME, their friends and families is being held at Dorset Gardens Methodist Church, St James Street Brighton (behind Tesco express) on Saturday September 12th call in anytime between 10.30am and 4.30pm. Work will also be on show in the church for the following 2 weeks. Entrance […]
Doctor Alastair Miller has joined the medical advisory panel of the Sussex & Kent ME/CFS Society that cares for many of those affected by ME/CFS across the counties. Dr Miller, Deputy Medical Director of the Joint Royal College of Physicians Training Board is chair of the British Association for CFS/ME (BACME) that is made up […]
Three of Brighton’s top destinations – The Brighton Wheel, the Grand Hotel and the Sea Life Centre – were bathed in blue, green and purple light, the colours of International ME Awareness Day, on Monday 12th May night in an awareness-raising event.
During ME Awareness week in May (11-17) the Sussex ME Society is marking the 10th anniversary of the establishment of a specialist NHS service in the county that has dealt with more referrals than any other local ME service in the UK. The Sussex ME Society enjoys a good working relationship with the NHS Sussex […]
The Brighton Wheel and the Sealife Centre were lit up in blue on 12th May for International ME Awareness Day. Nearly 20 people went along on the evening to support Bella Hoare and Lucinda Blackadder from the ME Mums Group.
A new scientific paper from the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health has revealed “distinct plasma immune signatures” in the early stages of ME/CFS. The report – which appears in the AAAS journal, Science Advances – describes the measurement of 51 immune biomarkers in blood plasma samples collected […]
A charity which supports people with the debilitating condition ME has welcomed new research into the sleep element of the illness. Zoe Gotts has shown that napping, particularly in the afternoon, is associated with poorer cognitive functioning and more daytime sleepiness in people with the condition. She recently spoke at a conference organised by the […]
As patron to the Sussex & Kent ME Society, Simon Kirby MP has asked the Department of Health why there is no information in the NICE guidelines for Chronic Fatigue Syndrome/Myalgic Encephalopathy on specific medications that are useful in controlling some of the symptoms of the illness. Many doctors are keen to help CFS/ME patients […]
Colin Barton, Chairman of the Sussex & Kent ME/CFS Society I have been involved in the medical field of Myalgic encephalopathy (ME) or Chronic fatigue syndrome (CFS) for more than 28 years and have seen many positive changes in the recognition and treatment of the illness(s). Amazingly though we still hear of a few professionals […]