About the Society
Working for our community since 1987
The Sussex & Kent ME/CFS Society is a constituted registered charity (1082681) founded in 1987 in partnership with hospital consultant Dr Keith Hine and Brighton MP Sir Andrew Bowden.
The organisation is managed by a small team of volunteers that include the charity’s trustees. The work is shared by the committee and other volunteers including those who run our special interest groups.
We are a member organisation of a number of local and national committees and working groups — including the NHS Kent & Medway CFS/ME Service and the NHS Sussex-wide CFS/ME Service, along with the British Association for CFS/ME (BACME) and the UK CFS/ME Research Collaborative.
The organisation has worked hard to maintain regular contact with members of the medical profession and support agencies in the region, and has kept ME/CFS in high profile through the local media.
Disclaimer: Treatments or practitioners mentioned on this website is for information only. We do not give advice or recommend specific treatments although we welcome contributions and opinions. Views expressed are not necessarily those of the Sussex & Kent ME/CFS Society or of its trustees.
A small team with a wide reach
The Society punches well above its weight for a volunteer-led organisation — reaching thousands of patients, clinicians and carers across two counties.
Volunteer-led
Every aspect of the Society’s work is carried out by volunteers. Our trustees provide governance and oversight, while committee members and local volunteers deliver services and support directly to members.
NHS partnerships
We hold working relationships with NHS Kent & Medway CFS/ME Service and NHS Sussex-wide CFS/ME Service, ensuring our members can navigate available clinical support and that the patient voice reaches commissioners.
National affiliations
As members of BACME and the UK CFS/ME Research Collaborative, we stay at the forefront of clinical and research developments — feeding findings back to our members in accessible, plain-English formats.
Affiliated with NHS services,
researchers & national charities
Our membership of national and regional bodies ensures we stay at the forefront of clinical developments, represent our members’ interests effectively, and collaborate with the organisations doing the most for people with ME/CFS.
Specialist NHS clinical service for CFS/ME patients across Kent and Medway, with which the Society holds an active working relationship.
Regional NHS specialist service covering the whole of Sussex, supporting patients with diagnosis, management and ongoing care.
The British Association for Clinicians in ME/CFS — the professional body for healthcare professionals working in this field.
A collaboration between researchers, clinicians and patients working to accelerate ME/CFS research, in which the Society holds membership.

Our chairman
Colin Barton — leading the Society
Our Chairman Colin Barton has played a central role in representing the Society to health authorities and NHS commissioners across the region. His work includes ensuring that the patient perspective is heard at a strategic level — influencing the commissioning and delivery of specialist ME/CFS services.
Under his leadership the Society has maintained strong working relationships with both NHS Sussex-wide and NHS Kent & Medway CFS/ME and the NHS Sussex paediatric ME/CFS services, and has continued to grow its reach and reputation as a credible voice for people living with ME/CFS across the extended Sussex and Kent region. Colin has served on a good number of regional and national committees and working groups over the years.
The Society’s committee and trustees work alongside the chairman to ensure the charity’s governance is sound, its finances are transparent, and its activities remain firmly focused on the needs of its members.
Nine distinguished supporters
The Society has nine honorary patrons who lend their name and influence to our work — helping to raise the profile of ME/CFS among policymakers, the public and the medical profession.
Five medical advisors
The doctors who advise the Sussex & Kent ME/CFS Society are some of the most qualified and experienced professionals in the field who have assessed and managed those affected by ME/CFS for years.
Dr Alan Stewart qualified in medicine from Guy’s Hospital in 1976 and underwent training in a variety of medical specialities, becoming a member of the Royal College of Physicians in 1979. He has worked in the independent medical sector since the early 1980s and wrote a variety of popular books on nutrition and women’s health. His interest in CFS/ME developed in the early 1990s and was appointed to the post of medical practitioner to the NHS Sussex CFS/ME service at the end of 2012. He maintains a broad awareness of medical problems and undertakes regular training through the Royal College of Physicians as well as through the various CFS/ME medical groups and societies. Whilst the cause(s) of CFS/ME remain uncertain Dr Stewart considers that there is now a clear and common-sense pathway to help many people with this diagnosis as well as other types of fatigue using a multidisciplinary approach. He considers that the success of the service is very much due to the presence of an experienced team of physiotherapists, occupational therapists and psychologists aided by the activities of patient support groups.
Alastair Miller was a Consultant Physician in the Tropical & Infectious Disease Unit at the Royal Liverpool University Hospital and an Honorary Fellow at the Liverpool School of Tropical Medicine 2005 until May 2014. He remains an Honorary Senior Lecturer at The Institute of Infection and Global Health at Liverpool University. Prior to Liverpool he was a Consultant in the West Midlands and Honorary Senior Lecturer in Infectious Disease at Birmingham University. He now works part time as an acute physician at the Cumberland Infirmary in Carlisle and part time in London as Deputy Medical Director at the Joint Royal College of Physicians Training Board.
Alastair trained in medicine at Cambridge and Westminster and in infectious disease in the Royal Navy, Birmingham and London. He worked with the Royal Marines in Kurdistan after the first Gulf War and was a consultant and Professor of Medicine in the Royal Navy.
He has been involved clinically with ME/CFS since his time as a registrar in the mid 1980s. He has been Chair of the British Association for Chronic Fatigue Syndrome and ME (BACME) and Principal Medical Advisor for Action for ME (AfME).
Dr Eccles trained in medicine at University of Cambridge and University of Oxford, completing a BM BCh in The History and Philosophy of Science, sparking a keen interest in philosophy of mind and brain-body interactions, and since graduation from medical school has pursued a combined academic clinical path at Brighton and Sussex Medical School. As an MRC Clinical Research Training Fellow she recently completed her PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms and is now an NIHR Academic Clinical Lecturer. She holds honorary clinical contracts with both Sussex Partnership NHS Foundation Trust and Brighton and Sussex University Hospitals NHS Trust.
Prof Harrison formerly based at Brighton and Sussex Medical School, now Clinical Professor in Neuroimaging at the Cardiff University Brain Research Imaging Centre. He completed a PhD in Neuroscience at the Welcome Trust Centre for Neuroimaging (UCL), and Psychiatry training at the Institute for Psychiatry and National Hospital for Neurology. His research investigates how inflammation in the body acts on the brain to impair mood, motivation and cognition and how it contributes to illnesses like ME/CFS.
Prof Findley was a consultant neurologist and clinical lead at the Essex Neurosciences Unit at Queen’s Hospital. He was also clinical lead for the Clinical Network Coordinating Centre overseeing the NHS Kent & Medway CFS/ME Service.
Prof Findley received his undergraduate medical training at the University of Sheffield, graduating MB, ChB in 1968. Between 1973 and 1981 he undertook postgraduate training in neurology at the Institute of Neurology, London and St Mary’s Hospital Medical School. He was appointed consultant neurologist at the Essex Neurosciences Unit in 1981. He was visiting consultant neurologist to Queen Elizabeth Military Hospital until its closure in 1991 and was appointed Professor of Health Sciences (Neurology) at University of London, South Bank in 1996. Prof Findley was the Clinical Director of a referral centre for patients with complex fatigue syndromes of all types. He has contributed to WHO and national guidelines on the subject of diagnosis and management of fatigue syndromes.