Sussex & Kent ME/CFS Society
Registered Charity No. 1082681
Last updated: 01/07/2026
1. Who we are
The Sussex & Kent ME/CFS Society (“we”, “us”, “our”) is a registered charity (number 1082681) supporting people affected by ME/CFS across Sussex and Kent. We are the data controller for the personal information described in this policy.
Contact details:
- Address: PO Box 309, Brighton, BN50 9FR
- Phone: 01273 674828
- Email: enquiries@measussex.org.uk
This policy explains what personal information we collect through our website, how we use it, and your rights.
2. Information we collect
Contact Us form
When you use the Contact Us form on our website, we collect:
- Name
- Email address
- Phone number
- Your message
This form is provided by Fluent Forms, a plugin running on our website. Submissions are used only to respond to your enquiry.
Join Us form (membership and mailing list)
When you use the Join Us form to become a member and/or join our mailing list, we collect:
- Name
- Address
- Email address
- Phone number
- Age
- An optional message
If you choose to pay your membership fee by PayPal, you will be directed to a PayPal payment page — please see PayPal’s own privacy policy for how they handle your payment information. We do not receive or store your card or bank details from PayPal transactions.
If you pay by bank transfer, we will retain the payment reference details necessary to match your payment to your membership. If you pay by cheque, your payment is processed manually and the cheque is not retained longer than necessary.
3. How we use your information
We use the information collected through these forms to:
- Respond to enquiries submitted via the Contact Us form
- Process and administer your membership of the Society
- Send you our newsletter and updates about the Society’s work, if you have signed up to our mailing list
- Maintain our membership records
We will only use your information for the purposes you provided it for, unless we reasonably consider we need to use it for another reason and that reason is compatible with the original purpose.
4. Our legal basis for processing
We process your personal information on the following bases:
- Consent — for example, when you sign up to receive our newsletter
- Legitimate interests — for example, responding to enquiries you send us, and administering membership records
- Contract — where processing is necessary to provide you with membership benefits you have paid for
You can withdraw your consent to marketing communications at any time by contacting us or using the unsubscribe option in our emails.
5. Sharing your information
We do not sell or rent your personal information to third parties.
6. How long we keep your information
We keep membership records for as long as you remain a member, and for a reasonable period afterwards to maintain accurate records, in line with our obligations as a registered charity.
7. Your rights
Under UK data protection law, you have the right to:
- Access the personal information we hold about you
- Ask us to correct inaccurate information
- Ask us to delete your information, in certain circumstances
- Object to or restrict how we use your information
- Withdraw consent at any time, where we rely on consent
- Ask us to transfer your information to another organisation, in certain circumstances
To exercise any of these rights, please contact us using the details in Section 1.
You also have the right to complain to the Information Commissioner’s Office (ICO), the UK regulator for data protection, if you believe we have not handled your information properly.
8. Cookies
Cookies we may use include:
- Strictly necessary cookies
- Analytics cookies
You can control or delete cookies through your browser settings at any time. Please note that blocking some types of cookies may affect how the website functions.
9. Changes to this policy
We may update this privacy policy from time to time. Any changes will be posted on this page with an updated revision date.
10. Contact us
If you have any questions about this privacy policy or how we handle your personal information, please contact us:
Post: Sussex & Kent ME/CFS Society, PO Box 309, Brighton, BN50 9FR
Email: enquiries@measussex.org.uk
Phone: 01273 674828