The work you do is absolutely amazing and really inspiring. It made such a difference last year when I was living in Brighton and very isolated. I was so impressed. Thank you so much for all the work you do for us” 


“I must say you really do an excellent job, you are always on the pulse. Your emails and information really make a tangible difference to many lives I am sure, it does to mine. I am very thankful for being a member and receiving your info. With having this information I am able to show my doctor I am taking this ME/CFS thing utterly seriously and it shows that if I am making the effort and changes perceptions for the better. So thank you helping us, I just wanted to say I am sincerely grateful”


“Thank you so much to everyone involved for your pioneering work and really helpful magazine.”

“I do very much enjoy the newsletter – it’s both informative and diverting. I admire very much and am grateful for the thought and effort that members of the committee put in on our behalf. Knowing that there are informed advocates in Sussex is very comforting.”

“Thank you for your brilliant support and information sharing. This society is the only thing that helps me through this illness especially through the long winter months.”

“A few months ago I called your society feeling ever so alone with what we were going through and I spoke to a very helpful man who said that he would call back with information about a ME specialist in our area. This was for my son who has been ill for several years but still with no real diagnosis of what was wrong with him. As promised he called back with details of a doctor who deals with children with ME, who was happy to see my son and diagnosed him with ME/CFS. I think it is ever so important for his recovery process to know that doctors are on his side and will hopefully help him to deal with what he is going through, and also now people have to listen and try to understand his illness. This is a big thank you to you all as you have made a difference!”

“Thank you for your stirling work and compassion. I love getting your newsletter.”


“I’ve had great benefit from reading the excellent magazine and thank you for all the hard work you do on our behalf.”

“Thank you for sending me this magazine it’s so good to hear about other people and their day to day management of this condition.”

“Your newsletter is a lifeline. Believe it or not I was once a copywriter: Now I find it so hard to put a few words together – it’s incredible. Do keep up the good work – it’s greatly appreciated.”

“I would like to thank you for the support my daughter and I have received from your organisation over the years she has been ill.”

“Thank you very much for all that you do to make life a little easier, in so many ways, for ME sufferers in the area as well as me!”

“I really appreciate the way that the society is fighting our corner and filtering the important information through to us. Please pass on my thanks to everyone involved.”


“I felt isolated and alone. No one understood what I was going through and I had nowhere to turn. When I saw the article in the paper I rang up straight away. I was so pleased to find out that there was finally a light at the end of the tunnel.”

“As someone who has had severe ME for many years please accept my thanks for all you do!”

“I should like to thank you for all the help and advice you give to us all and for the hard work involved in keeping us all up to date with news.”

“I just wanted to tell you how grateful I am for the magazine which has kept me informed and in touch all these years. It has made such a difference to know that you are all out there working away for us – you’re wonderful people.”

“I am feeling much better now and your publication has really helped me on my journey back to near normal life.”

“Thank you for all that you do to help people with ME, and their families!”

“Thank you for all you do for those with ME it’s great to hear from newly diagnosed that it’s now recognized more and help is available.”

“I have been a member for a very long time and am more or less housebound and so very grateful to have your newsletter and other information. I recognise that you have worked for us for over thirty years. Life would have been a great deal worse without you being there.”

clare-francis-1“Many thanks for organising such a brilliant meeting!”
Clare Francis




“The Sussex & Kent ME Society provide absolutely vital support to those people in society who suffer this debilitating and much misunderstood condition. At last research is being done into ME and also into the plasticity of the brain and nervous system, so perhaps hope will be allowed to shine its light into the darkness of some people’s lives.”
Jenny Seagrove