Informing · Supporting · Representing — since 1987
Informing, supporting and representing those affected by Chronic Fatigue Syndrome & ME
A community built around understanding, quiet care, and lived experience.
Myalgic Encephalomyelitis (ME) — also called Chronic Fatigue Syndrome (CFS) — can sometimes follow a viral infection (including COVID) or trauma. It affects around 8,000 people across our region.
Symptoms include profound physical and mental fatigue, concentration and working-memory difficulties, muscle pain, sleep and mood disturbances, and gastric problems. They vary and fluctuate, and can be made worse by over-exertion or stress. With good management, many of our members significantly improve.
Our membership also includes people affected by Fibromyalgia and Long Covid. A good number are virtually house-bound and in need of care — and we are here for every one of them.
The Sussex & Kent ME/CFS Society is a leading UK charity effectively working for those with ME/CFS
Stand alongside our community
Every member, every donation and every hour of time helps us reach more people living with ME/CFS, Fibromyalgia and Long Covid across Sussex and Kent. Choose the way that suits you.
Join Us
Membership connects you to information, support groups and the people who understand. Members and their families are at the heart of everything we do.
- Quarterly print & digital newsletter
- Local & online support meetings
- Members-only resource library
- Access to regional conferences
Donate
Your donation funds the helpline, our regional conferences, written guides for patients and clinicians, and direct support for members who need it most.
- One-off or monthly giving
- Gift Aid increases gifts by 25%
- In memory & celebration giving
- Leaving a gift in your will
Volunteer
Whether you have an hour a month or a steady afternoon a week, your time keeps the Society running. We welcome volunteers across our region.
- Telephone befriending
- Help with events & mailings
- Egroup for members
- Driving & errand support
Small gifts, lasting support.
We rely on the generosity of members and the public to run the helpline, produce our guides, host our regional conferences, and reach the most severely affected. As a registered charity, every donation is used carefully and reported on openly.
News, research & member voices
Updates from the Society, plain-English research summaries, conference news, and stories from members across Sussex and Kent.
Neurodiverse connections
Sussex Argus – June 29th A recently published study by a research team at the Brighton and Sussex Medical School explores an issue that many people with ME/CFS…
Youngsters service to be expanded
“NHS Sussex would like to thank everyone who has shared their experiences and concerns, especially the Sussex and Kent ME/CFS Society, whose advocacy continues to shape our approach.…
ME Awareness
During ME Awareness time this year our charity marked it’s 40th anniversary and has been nominated for the Kings Award for Voluntary Services. One of the most significant…
ME (Myalgic Encephalomyelitis), also known as CFS (Chronic Fatigue Syndrome), is a chronic neurological condition. It is not ordinary tiredness — symptoms include profound physical and mental fatigue, post-exertional malaise, sleep disturbance, cognitive difficulty and muscle pain.
Symptoms vary and fluctuate, and can be made worse by over-exertion or stress. With good management, many people significantly improve over time.
No. You can join as a member whether you have a formal diagnosis of ME/CFS, Fibromyalgia or Long Covid, are awaiting assessment, or are a family member, carer or supporter of someone affected.
Members receive our quarterly newsletter, access to local and online support meetings, our members-only resource library, discounted seats at our regional conferences, and the helpline for one-to-one conversations.
Yes — and we particularly want to hear from you. Many of our most active members are house-bound. Meetings can be joined by phone or video, the newsletter arrives by post, and our volunteers offer telephone befriending.
Your gift funds the helpline, our patient and clinician guides, regional conferences, and direct support for members in greatest need. As a registered charity we publish annual accounts and trustees’ reports.
Yes. We support members across East and West Sussex, Brighton & Hove, and Kent — including Medway and the borderlands. If you’re nearby and identify with our community, you’re welcome.
Proudly affiliated with patient charities,
NHS partners, researchers & funders.
