Fortunately, The Sussex & Kent ME/CFS Society has seen a large number of its members obtaining a timely definitive diagnosis and receiving the best attention available. This has led to people making significant improvements with some able to move on to lead active lives. Regrettably, we are also aware of many that have been less fortunate and […]
The Sussex & Kent ME/CFS Society has welcomed a new UK-wide specialist service that can accept referrals from our region and liaise with the NHS Children and Young people’s ME/CFS Service based at Brighton General Hospital that assists in the management of children affected by the debilitating illness. The Bristol based specialist multidisciplinary treatment service […]
Researchers conducting the Brighton & Sussex University Hospitals NHS Trust and Brighton & Sussex Medical School ME/CFS/FM studies are now busy analysing and writing up data. They reached their target for both healthy controls and patients during October. Watch this space with further updates on the results.
Early correct diagnosis – Mid Sussex Times 8/10 Sussex & Kent ME Society is working to highlight the importance of getting an early correct diagnosis. Myalgic encephalopathy (ME) or Chronic Fatigue Syndrome (CFS) can overlap with other disorders such as a primary sleep disorder or depression. “ME that can sometimes follow a viral infection or […]
The Autumn issue of our quarterly 16 page newsletter is now available. The latest publication includes articles by professionals on the Sussex-wide CFS/ME Service, Counselling, Kent Centre for Independent Living, Research being carried out locally, Stress management, Dysautonomia, Root Experience book, Yoga for ME and National news on the MRC and GP training and NICE […]
A new Yoga drop-in class has recently formed in Hove to help people affected by ME or chronic fatigue syndrome towards better health. The classes are led by a qualified teacher with a good knowledge and understanding of ME or CFS and fibromyalgia. The classes are welcoming and supportive and encourage people to work at […]
Research has shown a chronic fatigue condition is linked to a poorly working nervous system. A team from Sussex University and Brighton Medical school has been conducting studies into ME or chronic fatigue syndrome and fibromyalgia, a condition that causes pain all over the body. The study suggests the illnesses involve a malfunction of the […]
Researchers at Sussex University are leading the way in studying ME or Chronic fatigue syndrome and Fibromyalgia by investigating the post-exertional malaise that is a key marker of the illnesses and also looking at the mechanisms of chronic pain and fatigue. The projects are a collaboration between the Brighton and Sussex University Hospitals NHS Trust […]
A research team at the neurosciences department of Sussex University are keen to recruit healthy controls for a study being carried out looking at the brain-body mechanisms of chronic pain and fatigue in those affected by Chronic fatigue syndrome and Fibromyalgia. The study involves three study visits to Brighton and Falmer of up to 5.5 […]
The Sussex & Kent ME/CFS Society is one of the few ME charities that continues after over 30 years to produce four newsletters per year for it’s subscribed members. Published quarterly, and full of the latest local and national news and developments along with useful contacts.